Developing a Legal Framework for Population-Based Cancer Registries: A Toolkit

Researchers from the International Agency for Research on Cancer (IARC) and its partners the McCabe Centre for Law and Cancer (Australia) and the African Cancer Registry Network (AFCRN) have developed a new toolkit to serve as a resource to support countries in establishing a legal basis for the mandatory reporting of cancer diagnoses to a population-based cancer registry. This information has been published as IARC Technical Publication No. 49: Developing a Legal Framework for Population-Based Cancer Registries: A Toolkit.

The toolkit comprises a report and several online tools to enable a structured approach to drafting a law. It ensures compliance with international best practice while allowing flexibility for local adaptation.

A move towards mandatory reporting of cancer diagnoses to population-based cancer registries would enable much more complete collection of data by registries, thus giving policy-makers and health-care professionals a clearer understanding of the cancer burdens in their region and providing evidence needed to implement more effective and more tightly targeted cancer control policies.

Davoren S, Parkin DM, Liu B, Rosales Sto. Domingo MA, Kitonyo-Devotsu R, Jones H, Bray F
Developing a Legal Framework for Population-Based Cancer Registries: A Toolkit
IARC Technical Publication No. 49

Read IARC Technical Publication No. 49