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The International Agency for Research on Cancer (IARC) is supporting the Biobanking and BioMolecular resources Research Infrastructure – European Research Infrastructure Consortium (BBMRI-ERIC) in launching an initiative to better understand the landscape of paediatric biobanking, its needs, and future research opportunities.
BBMRI-ERIC and its Stakeholder Forum Patient Pillar, in collaboration with the Center of Excellence in Biobanking and Biomedical Research at the University of Cyprus, are inviting all actors in the paediatric community to participate in a survey to share viewpoints, exchange best practices, and engage in a dialogue about paediatric biobanking and its ethical, legal, and social implications (ELSI). This initiative includes those involved in translational research and paediatric biobanking in addition to patients, researchers, clinicians, ELSI experts, minor participants, and citizen groups. The deadline for completing the survey is 30 September 2021.
IARC estimates that each year about 215 000 children younger than 15 years and about 85 000 children aged 15–19 years are diagnosed with cancer. High-quality clinical samples and data on childhood cancer, provided through paediatric biobanks, are critical to better understand and combat the disease.
